Anticoagulant Patient Views

I had HELP apheresis, hyperbaric oxygen and blood thinners to address microclots. Probably all helped to some extent but I think probably the blood thinners most, given that the patient got a significant step-wise improvement with each titration up in dose.

The patient took clopidogrel and apixaban (was recommended aspirin too to make it ‘triple therapy’ but can’t tolerate aspirin). Obviously these meds aren’t without risk and need an experienced doctor to prescribe.

Over a few months, these meds got the patient from mainly sofa bound to walking 3 km a day, and improved severe brain fog to more of a moderate cognitive fatigue. Unfortunately after a few months the patient relapsed and we now think that there’s something very inflammatory and/or autoimmune going on - but other people have maintained their progress from blood thinners, especially if they’re treated earlier in illness.

‘Triple Therapy’ and ‘Professor Resia Pretorius’ are good search terms if you want to google more about the science! 😊

I started trying platelet aggregation inhibitors (aspirin) due to chronic cardiac pain in 10/23 (no cardiac deficiency found). I must say it has helped with pain a lot and somehow was matching those microclot theories that were published. I am however unsure… Is there anyone who has also tried this? What are your experiences?

It was extremely life changing in the beginning. But I feel myself slipping back. Neurological issues are starting back

I just started Dr Jaco Laubser’s protocol using blood thinners for clotting. I have had an improvement in symptoms in week 1 - quietly hopeful

Maybe six months?

They prescribed it earlier, but I didn't want to start and confuse things when I was also doing triple anti-coagulant therapy.

I had HELP apheresis, hyperbaric oxygen and blood thinners to address microclots. Probably all helped to some extent but I think probably the blood thinners most, given that I got a significant step-wise improvement with each titration up in dose.

I took clopidogrel and apixaban (was recommended aspirin too to make it ‘triple therapy’ but can’t tolerate aspirin). Obviously these meds aren’t without risk and need an experienced doctor to prescribe.

Over a few months, these meds got me from mainly sofa bound to walking 3 km a day, and improved my severe brain fog to more of a moderate cognitive fatigue. Unfortunately after a few months I relapsed and we now think that I’ve got something very inflammatory and /or autoimmune going on - but other people have maintained their progress from blood thinners, especially if they’re treated earlier in illness.

‘Triple Therapy’ and ‘Professor Resia Pretorius’ are good search terms if you want to google more about the science! 😊

It’s a blood thinner so check with your doc. FYI…I felt worse for a week or two before I improved

Thank you for this. Currently at a low low point 2 years 3 months in, and this gave me some little hope. I think I’m going to try the triple blood thinner therapy. Mine has a lot to do with getting out of breath easily, and my legs fatigue and my legs have bad circulation, and blood pressure is either too high or too low.

Honestly, I don’t think Aspirin is enough. I had my blood tested for micro clots twice. First time in a clinical trial by Mount Sinai where I didn’t get the results for 18 months, and then again by a private doctor using the same technique. My microclots were severe & widespread. Prior to both tests I had been on aspirin for 2 years. I then went on Eliquist & Nattokinase/serrapeptase in addition to Aspirin under the direction of a doctor. My symptoms improved, but I am still disabled. I think covid did too much damage prior to starting the anticoagulants. I would only do it under a recommendation of a doctor due to the risk of bleeding.

They used a very specific test which you can read in the study's method section. This paper also explains the treatment protocol in detail. I was on the first line treatment, but tests revealed a Clopidogrel resistance so I was put on Ticagrelor 90mg twice daily and Aspirin 150mg once daily.