Coenzyme Q10 Patient Views

From another post I just wrote:

I read the recent studies, and was surprised they used oxidized CoQ10 vs reduced, which is absorbed multiple times better – and also focused on improved symptoms vs halting further symptoms, which I always read was the purpose of the Ubiquinol. Although, in the 2nd CoQ10 study, they did have good results in helping with symptoms, but the 3rd study didn’t bear that out. But I’m still confused as to the type of CoQ10 they selected.

My friend agreed to try this, but wants to wait until he finishes his CoQ10 standard drug store stuff – 100mg twice a day. The Ubiquinol should make a difference at 1200mg, per the 2nd CoQ10 study, especially since, not only is it a higher dosage, it is 3X+ better absorbed. Wish we didn’t have to wait.

Take CoQ10.

Even though CoQ10 failed to slow PD progression in this trial, it has neuroprotective effects and statin use lowers CoQ10.

My father had PD and I have many of the early symptoms like loss of smell, REM sleep disorder, and orthostatic hypotension. The CoQ10 takes away my OH symptoms so I no longer become dizzy when standing up quickly.

Don't know about Quercetin, but I heard in most cases CoQ10 helps slower the progression. I have come across the research many times and in the groups that I am active, people do take it and it has shown some benefit.
Second one being N-Acetyl Cystine. This has shown benefits too. not sure about NAC, but my relative has been taking Coq10 ( Doctors Best CoQ10), and she has somewhat more energy.

Hi a fellow forum member. I tried ubiquinol 1200mg per day for several months but I didn’t notice any change in my symptoms.

Sometimes I get so weary of all the ‘holy grails’ of natural treatments for PD

Hi a fellow forum member. I tried ubiquinol 1200mg per day for several months but I didn’t notice any change in my symptoms.

Sometimes I get so weary of all the ‘holy grails’ of natural treatments for PD

I try to exercise daily, 5 days a week for at least 30 minutes. Usually more. I go to boxing classes, go to the gym, walk, etc. I find I go through periods of quite a lot of joint and muscle pain, and exercise seems to help as long as I don’t push too hard. If I over exert I feel horrible, flu-ish. COQ10 has made a major difference as have pregnenalone, vit D, and other supplements. I'm taking Sinemet and Ropinerole and Azilect. I've been diagnosed for 4 years or so. Six months ago I went to see a naturopath to see if I could feel better. He did blood work, and recommended a bunch of supplements. They have definitely made a major difference in my energy level as well as my sleep and sense of well being. additionally the naturopath found that I have hugely elevated levels of lead and mercury. I did a series of chelation sessions. I feel pretty good a lot of the time now. onward!

I concur, I've never been a vitamin person...if you eat well-rounded meals, fresh produce, making meals at home, then supplements shouldn't be needed unless you are deficient with something like iron...but that's just me yapping...the only supplement that was told to me by my neurologist early on was CoQ10...in massive doses....can't even remember what the benefit was supposed to be..but it was really expensive back then....but that theory was drained out...it still may help some..and it's much more affordable these days...the only other supplement my GP suggests is D3...but it's winter in Indiana and there's not a lot of sunshine...but I do believe it's a deficiency that a lot of people with Parkinson's have...although I really don't know for sure...